Sufferers of gentic disorder Ehlers-Danlos Syndrome let down by HSE over UK treatment funding

marfan syndrome uk logo squareAimee Foley would love nothing more than to start a family with her fiancé.
Yet her battle with Ehlers-Danlos Syndrome and the ongoing fight for treatment means she cannot yet fulfil her dream of becoming a mum.
Aimee, 26, was diagnosed with EDS in May after six years of constant illness.
The incurable condition affects the skin, joints, muscles, blood vessels and organs — and, at its most severe, can be life-threatening.
However, there are no EDS specialists in Ireland, which means Aimee must travel to London for expert assessment and treatment.
And the stress of travelling has been made worse for Aimee, her mum Deirdre and the rest of her loved ones, by fears the HSE will not fund her treatment under its Treatment Abroad Scheme.

Read more: http://www.thesun.co.uk/sol/homepage/feeds/smartphone/ireland/5026115/Our-very-own-country-has-turned-its-back-on-us.html#ixzz2aF94pDPj

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One thought on “Sufferers of gentic disorder Ehlers-Danlos Syndrome let down by HSE over UK treatment funding

  1. Pingback: Ehlers Danlos Syndrome: Your Eyes and EDS | www.MyZebraSoup.com

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