Most mothers will do anything for their children. When Tanner Hoops was diagnosed at the age of 3 with Marfan Syndrome, mom Tonya Archer, after finding him a team of doctors that knew how to treat the condition, immediately became involved with the Heart of Iowa Chapter of the National Marfan Foundation and raising funds to help spread awareness for this disorder.
One way in which Tonya has done so is to design, create and sell wonderful jewelry from beach glass, from shells and coral, from turquoise, and giving from 50 percent to 100 percent of her profits to the foundation.
“I just wanted Tanner to know he was not in this by himself,” she said.
Tanner, a senior this year at Storm Lake High School, appreciates his mom’s involvement with the foundation and is quick to say how awesome her creations are.
Marfan Syndrome is a disorder of connective tissue – that which holds all parts of the body together and helps control how the body grows. Because connective tissue is found throughout the body, Marfan Syndrome features can occur in many different parts of the body.
Read More: Pilot Tribune