Hannah on the run to help Annabelle – Vascular Ehlers-Danlos Syndrome

marfan-syndrome-uk-logo-square150A KIND-HEARTED teenager has completed a 10k run with her mum to raise money for a Bury youngster with an incurable and life-threatening condition.

Four-year-old Annabelle Griffin, of Wilby Close, Brandlesholme, suffers from life-threatening Vascular Ehlers-Danlos Syndrome (VEDS) which means just a slight knock could mean a hospital visit.

Sixteen-year-old Hannah Alderson, of Lomand Drive, Tottington, is friends with Annabelle’s older brother Ryan and follows the family’s online fundraising campaign, Annabelle’s Challenge.

Hannah, a student at Holy Cross College, ran in aid of Ehlers-Danlos Support UK, a charity which funds research and helps suffers from the rare genetic condition live full lives.

Alongside mum Donna, aged 46, and family friend Natalie Burke, aged 39, Hannah completed the race in 48 minutes — smashing their original £200 target by raising around £450.

She said: “After meeting Annabelle when being over at the Griffin household, I knew I wanted to help her in some way. She is such a lovely little girl who showed me a thing or two on the hula hoop so the least I could do was to raise money and awareness of EDS and Annabelle’s Challenge.”

Read More: This is Lancashire

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