St. George’s Erika Crawford tells her story in the hope that others will give – EDS

CRAWFORDErika Crawford had 56 blood transfusions last year.

The 18-year-old from St. George was diagnosed with S1 protein deficiency, a clotting disorder, an iron deficiency and Ehlers-Danlos syndrome — a connective tissue disorder that effects her muscles, joints and organs — in 2012.

She has had many surgeries, including a skull realignment, total ACL repair, spine decompression and more.

“It’s a progressive disease,” she said. “I know it’s only going to get worse.”

Without the blood transfusions that keep her stable, Crawford would have many more problems — or worse. She may not be here.

“I know what it’s like to be sick,” she said. “There are so many other people who need support and I want to give back.”

Read More: Brant News

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