This first jointly created by the Marfan Trust and Marfan Forum is still available to buy – https://marfansyndromeuk.wordpress.com/2020/11/04/the-young-adults-booklet-is-still-available/
young adults new front page
This first jointly created by the Marfan Trust and Marfan Forum is still available to buy – https://marfansyndromeuk.wordpress.com/2020/11/04/the-young-adults-booklet-is-still-available/
Marfan Syndrome UK from the Marfan Forum 
purchase info available here – https://marfansyndromeuk.wordpress.com/2020/11/04/the-young-adults-booklet-is-still-available/
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